We were able to bring Riley home this afternoon. 17 days at the hospital was enough. It feels weird to be at home, it makes all the events of the last 2 or 3 weeks seem even more like just a trip to the Twilight Zone. Riley is doing well, but still has 8 days left of the Deximethisone (steroids). They are making her crazy. She is moody, grouchy, needs to be in direct physical contact with us, will not let you put her down for even a second, she swats at everyone and grunts, sometimes starts slapping herself in the face. They also make her crazy hungry so she is still CONSTANTLY wanting something to eat and keeps saying "sna, sna, sna, sna, sna,sna" (snack). She will surely gain weight no problem now, the doctor is more concerend what her eating/appetite will be like once she is off the steroids. The whole hospital stay, all the side effects, it all seems like such a small price to pay for all the live-saving care Riley has recieved. I was trying to describe to Jenni today a feeling of almost not wanting to leave the hospital...I think it boiled down to feeling like I would do anything for my daughter. Or wishing I could do more, instead of her taking the brunt of it all. It was a feeling that going home was almost a luxury and I'd stay in there as long as it took (even in a shared room with the obnoxious, belching, beat-boxing guy).
Subscribe to:
Post Comments (Atom)
11 comments:
Jaron and Jenni - This is such great news. Riley is a trooper!!! Still praying...
YEAHHHHHHH!!!!!!!!!!!
What wonderful news!
Uncle Chris and Aunt Karen
I think I get it, Jaron. Nothing else really matters when all you want is for your little girl to be okay and feel good.
Riley is probably going to be one of the toughest girls we know after going through all this and our prayer is that this will become a huge part of her testimony. She'll be telling everyone how much God took care of her and her family.
You guys are amazing - I'll be counting down these steroid days with you.
There's no place like home!
Love you!
GREAT news that you are home. I'm at the Brummes for the weekend. We were just talking about you all and decided to check up on you on the blog.
We will keep praying!
Yay! Welcome Home!!!! Things will settle down and routine will set in again. I can only imagine what she's been through. She will bounce back and be your sweet lovable little girl in due time. Continuing to keep you all in my prayers.
Blessings!
Carole Heald
Dearest Jaron,Jenni,Avery and Riley
We are constantly rejoicing that you are all at home together. Praying the steroid treatment does its job and then can be put behind you.
Praying our loving Father will give you rest, sleep, energy and any specific thing He knows is needed.
You are each one so precious to us and we SO appreciate all you have done to keep everyone in the loop through this long ordeal.
We love you every moment
Oops - forgot to sign our anonymous message - Love G'pa & G'ma
So glad to hear you guys are home and on the mend! My brother (Chris) shared the story about you guys and Riley. You've got one tough daughter and each day of recovery is going to get brighter and brighter. Really great news that all went well! Take care.
-Sean F.
Praise God from whom all blessings flow! How wonderful to watch her eat:) I can identify with all those side effects of steroids (I've been on dexa... also). But, trust it will do its work and then she'll return to her sweet self.
Always keep these days in your heart as a time when you knew God Almighty was in charge and able to do all you trusted Him to do.
With much love from Aunt Debbie and Aunt Chunk. Thinking and praying for you here in sunny AZ.
Post a Comment